{"id":5313,"date":"2019-09-26T17:44:55","date_gmt":"2019-09-27T00:44:55","guid":{"rendered":"http:\/\/www.uncle-andrew.net\/blog\/?p=5313"},"modified":"2019-09-26T17:44:55","modified_gmt":"2019-09-27T00:44:55","slug":"chapter-3-how-to-become-un-listed","status":"publish","type":"post","link":"http:\/\/www.uncle-andrew.net\/blog\/?p=5313","title":{"rendered":"Chapter 3: How to Become Un-Listed"},"content":{"rendered":"<p>To be fair, you don&#8217;t actually get removed from an organ transplant list unless you die or get a transplant.  You just get &#8220;suspended&#8221;.  How you can become suspended depends on your transplant center.<\/p>\n<p>In the U.S. when you say &#8220;I&#8217;m on an organ transplant list.&#8221; it really means &#8220;I&#8217;m registered with UNOS through my transplant center.&#8221;<br \/>\nHere&#8217;s what UNOS has to say about themselves: United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation\u2019s organ transplant system under contract with the federal government.<br \/>\nThey&#8217;re a class act.  They&#8217;ve got really strict rules about fairness and equality, they&#8217;re pivotal in promoting both deceased and live organ donation, a lot of their staff are volunteers, and they are awake and running every hour of every day of every year.<br \/>\nUNOS provides the organs and the basic guidelines of which organs go to whom.  For instance even if an adult is a perfect match for an available child&#8217;s kidney, the organ will go to the child who is the best match on the pediatric list even if they aren&#8217;t as good a tissue match.  The transplant centers provide the rules for everything else.<\/p>\n<p>It&#8217;s the rules for qualification for the individual transplant centers that can trip you up.  Each center has their own rules about who they&#8217;ll take on.  Everything from your health insurance (will you have the same insurance for at least the next two years?) to physical health (do you meet that center&#8217;s &#8220;medically eligible&#8221; standards?) to financial and family status and whether or not you live in an area where you have access, or can get it, to the unusual pharmaceuticals that you&#8217;ll need for the rest of your life.<br \/>\nAnd the vaccines!  Doux Jesus, the vaccines!<br \/>\nJust a wee tip for anyone out there who may be leery of vaccinations for whatever idiotic reason:  You cannot get an organ transplant if you&#8217;re an anti-vaxxer.  Period.  Andrew got a TDaP and MMR booster, he was vaccinated for hepatitis A and B (and maybe C and E, I don&#8217;t know), he was vaccinated for shingles, pneumococcus, and a couple others that I lost track of.  For a couple of months after Andrew was listed through the University of Washington&#8217;s transplant center every single damn time he came back from a doctor&#8217;s appointment he&#8217;d been vaccinated for something else.<\/p>\n<p>Spoiler alert!  Not all transplant centers are the same.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>To be fair, you don&#8217;t actually get removed from an organ transplant list unless you die or get a transplant. You just get &#8220;suspended&#8221;. How you can become suspended depends on your transplant center. In the U.S. when you say &#8220;I&#8217;m on an organ transplant list.&#8221; it really means &#8220;I&#8217;m registered with UNOS through my [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-5313","post","type-post","status-publish","format-standard","hentry","category-margarets-musings"],"_links":{"self":[{"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5313","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5313"}],"version-history":[{"count":3,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5313\/revisions"}],"predecessor-version":[{"id":5316,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5313\/revisions\/5316"}],"wp:attachment":[{"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5313"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5313"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.uncle-andrew.net\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5313"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}